Just recently I was able to go away for the weekend - for fun! For the first time in 18 years, I was able to travel to another city, stay overnight, and not have any doctors appointments or procedures. And what made it even better was going with my sisters! Faith was well-looked after by respite care. She even had a friend come over to visit and her grandparents, too! Of course getting away did not come without a challenge or two. The day before leaving, as I was cleaning the entire apartment and getting ready to pack, a staff member at Faith's day program told me her feeding pump was not working. I only had an hour before I had to pick her up so I cruised down to our DME provider and asked if I could get a loaner pump since hers was not working. Unfortunately, they no longer carry the type of feeding pump she uses, so I needed to get a whole new system. This required me to learn how to use it and then make sure Faith's respite staff and her day program staff was going to know how to use it. I wrote down lots of instructions, took photos, and made a video. This took up a lot of time, and needless to say I didn't get to bed until well after midnight, without even packing. Thankfully everything went smoothly the next morning and I was able to pack and get ready to go. Faith's first caregiver arrived and my sister, Dawn came to pick me up. I jumped into her pickup and we went barreling down the Interstate rockin' out to the Bon Jovi station on Pandora. We a...