Maddy just took her first step?after five years of crawling. Jonathan has just mastered eating with a spoon. He is nine years old. Gianna made the school cheer team?she was the first differently abled girl ever to do so in her hometown. Milestones that the parents of typically developing children take for granted are cause for huge celebration to the parents of kids with rare genetic conditions.
After spending time with her best friend?s son, Ethan, who has Angelman Syndrome?a disorder that primarily affects the nervous system?New York City-based portrait photographer Karen Haberberg knew she wanted to meet more kids with rare genetic conditions and document their daily joys and struggles.
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